Media Release: Doctors, Lawyers, and Privacy Experts Denounce Sharing Patient Health Data for Secondary Use
Australia, Melbourne — Monday 26 August 2019 — EFA, Future Wise, Digital Rights Watch and APF today call again for a comprehensive review of privacy provisions for healthcare data. Following the HealthEngine scandal in 2018, and the recent use of Pharmaceutical Benefits Scheme (PBS) data to assist recruitment into research on Bipolar disorder, a Twitter […]
Australian Digital Rights Organisations Call For Politicians To Clarify Their Dealings With Cambridge Analytica
JOINT MEDIA RELEASE BY ELECTRONIC FRONTIERS AUSTRALIA, FUTURE WISE, AUSTRALIAN PRIVACY FOUNDATION, AND DIGITAL RIGHTS WATCH In light of the revelations that Cambridge Analytica has reportedly misused the data of over 50 million people on Facebook, Australia’s leading digital and civil rights advocates call on all Australian governments and political parties to categorically answer the […]
ABC Radio Interview: Does technology know you better than your family or friends?
EFA’s Chair Lyndsey Jackson spoke with ABC Radio’s Rod Quin and callers early Saturday (10/2/18) morning about the data we share and what it can reveal about us. Increasingly people are discovering the impact and value of the information we give out. Callers shared caution and distrust in the way data mining was building profiles […]
Big data: more isn’t always better
Big data is big news these days. But most organisations just end up hoarding vast reams of data, leaving them with a massive repository of unstructured – or “dark” – data that is of little use to anyone. Given the potential benefits of big data, it’s crucial that we find better ways to gather, store […]
